Mają córkę z zespołem Downa: Postanowili, że zaadoptują też chorego chłopczyka!

Allison i Andrew Sweatman to para absolutnie wyjątkowa: Po tym, jak ich córeczka urodziła się z zespołem Downa, stawili czoła jej chorobie i stworzyli Rosie prawdziwy, kochający dom. W niedługim czasie postanowili także zaadoptować 4-letniego, chorego chłopca

Na przekór chorobie

Córeczka Allison i Andrew – Rosie – urodziła się z zespołem Downa i wadą serca. To całkowicie wywróciło spokojne dotąd życie małżonków, którzy mieszkali w Chinach. Postanowili jednak powrócić do Stanów, by tam całkowicie poświęcić się opiece nad chorym dzieckiem. Rosie cierpiała też na napady padaczkowe i kraniosynostozę (deformację czaszki), przez co pierwszy rok życia spędziła w szpitalu. Rodzice jednak nie załamali się i postanowili zrobić wszystko, by ich córeczka miała szczęśliwe dzieciństwo: „"Najważniejszą rzeczą było to, że widzieliśmy, jak nasza córka pokonała tyle przeszkód i tyle wielkich niebezpieczeństw, że coś takiego jak zespół Downa - ten dodatkowy chromosom - przestało być dla nas przerażające" - powiedziała Allison w rozmowie z metro.co.uk.

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These movements we’ve been seeing are indeed seizures. This is SUCH a bittersweet feeling. We knew something was “off” but we were hoping we were wrong. After a good cry, I’m mostly ready to press onward with the plan. We are changing meds a little, monitoring overnight, and getting a CT tomorrow before heading home 🙌🏼 Our surgeon wants imaging so we are getting a CT and we will review it at a clinic appt we have in a few weeks. . So many feelings after this hospital stay. It has been short but impactful. The truth is, though, Rosie is the same Rosie she was when we walked through those ER doors yesterday. Still possessing a uncanny ability to brighten anyone’s day. Still the apple of my eye. Still knocking off everyone’s socks with her unpredictable progress. She’s amazing. She’s riveting. She’s just our Rosie! . #gtubebaby #downsyndrome #craniosynostosis #epilepsyawareness #seizures #arkansaschildrenshospital #heartwarrior

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Dodatkowe szczęście

Rodzice Rosie nie tylko nie załamali się chorobą córki, ale postanowili też adoptować innego malucha z zespołem Downa: "Zawsze wiedzieliśmy, że chcemy zaadoptować dziecko, więc gdy nadszedł czas, aby poważnie się nad tym zastanowić, stwierdziliśmy, że nie ma sensu, abyśmy wykluczać dzieci z powody chromosomów - zwłaszcza, że istnieje tak duża potrzeba adopcji dzieci o specjalnych potrzebach." – wyznała matka Rosie. Starszym bratem dziewczynki został 4-letni Beau. Trafił on do pary po tym, jak okazało się, że jego biologiczni rodzice nie są w stanie zapewnić mu odpowiednich warunków i opieki. Allison i Andrew postanowili pomóc chłopczykowi i od tej pory tworzą dla Rosie i Beau szczęśliwy i pełen miłości dom. Rodzicom i ich pociechom życzymy wszystkiego dobrego!


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When you experience exactly what you’ve prayed for. 😭 We prayed for EXACTLY THIS, y’all. When Beau came home with us he brought joy, happiness, and VOLUME to the house. On the flip side, Rosie is a pretty chill little lady and loud noises tend to upset her when she’s not used to them. Beau, with all his loudness and personality, was bringing Rosie to tears on a daily basis for the first couple of months he was home. He would holler, she would startle and then absolutely melt down. I believe this is a symptom of her PTSD from the first year of life. It was getting so stressful because he was just wanting to play and express himself but Rosie just couldn't handle the loudness. . We prayed to see them meet somewhere in the middle. Rosie needed to get used to her new brother’s voice/energy and Beau needed to learn to calm down and express himself without QUITE so much screeching. 😆 We prayed for them to interact as siblings with love and understanding. We knew this would take a long time and evolve into something great, we would just have to be patient. . We’ve waited 6 months to see these two smile, laugh, play together. Rosie is still learning how to play and the last few weeks we’ve seen him include her and hand her toys. We’ve seen him give her kisses on the cheek without prompting. We’ve seen him be intentionally gentle with her. He even helped me get her in the stroller with him the other day. It’s the little things, y’all! We still have our *moments* but they are MUCH fewer. . Our little family has come so far since the foundation was shaken six months ago. Now to plan this boy’s fourth birthday. 😭You can find me over here in a puddle of tears. . #adoption #specialneedsadoption #downsyndromeadoption #downsyndrome #siblings #rosiegram #beaugram #brotherandsister #siblinglove

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The @whole30 community and those who lead it just rolled out the Whole30 Diversity Scholarship and I couldn’t be more thrilled. With this program, two of the most important things in my life are coming together: 1) The power of REAL FOOD 2) Inclusion . As the parent of two children with special needs, inclusion and representation matter to me more than I can express. Just like all parents, I look at my kids and ask myself, “What will they LOVE? What will be their passion in life?” Perhaps the difference for me is that I also ask, “Will they be accepted into that community? Will the labels they’ve been given hinder their enjoyment of it?” When I see efforts like this scholarship come from leadership in a community, I have hope for a brighter future for my kids. Let this be an example for other spaces to open up and EXTEND A HAND at the risk of being “too much” for everyone else. It’s important because the truth is that STILL in 2018, people with the same diagnoses as my kids aren’t fully included in education and many other parts of society. Not so in this real food space. Not so in this community. I’m so grateful. . Furthermore, I’m raising real food warriors. Both of them eat what we eat, for the most part: protein, fat, veggies, fruits. Because of @whole30 we identified some sensitivities that we leave out. Both have had health issues resolved and improved because of the power of real food. This program was my gateway to serving my children in this way. . Side note: one of my kids, Rosie, consumes her nutrition primarily via gtube. My first @whole30 taught me how to build a healthy diet of blended real food nutrition for her. This is singlehandedly the most proactive decision I’ve made for my “medically fragile” child and I’m forever indebted to @melissa_hartwig for showing me how to do this. . Inclusion matters, y’all. Thank you, @whole30 for getting it right. . Now, enjoy these pics of my kids enjoying real food. I think they might be the first second-generation Whole30 Certified Coaches, but I’m probably getting ahead of myself ☺️ . #realfood #blendeddiet #gtube #whole30 #downsyndrome #inclusion #inclusionmatters #food #jerf

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